{I started writing this on Sunday morning, before I wrote my last post. My son still isn’t doing well–I think he has croup–but we haven’t decided to high tail it home yet. We currently have one night booked at a Motel 6 in LA and we’ll reassess tomorrow when we see how everyone feels. My guess is we’ll be heading home Wednesday morning instead of Friday. Anyway, this post is about a totally different topic, something else (besides my sick son) that has been keeping me up at night.}
I’m sitting in the car, typing this on my phone. My son is sleeping in his seat. It’s hours before his nap but he’s clearly not feeling well and I can hear him trying to breath through his congested nose (so sad sounding) so I’m letting him sleep even though it means he might not nap later on. Honestly I thought he’d be up by now. Maybe I should wake him up. But he might not nap later even if I wake him up now… Ah! I hate when I don’t know what to do, when I can’t see into the future so I need to make a choice based on what I know, and what past experience suggests might happen later. (Although that never seems to be what actually happens later, does it?) Man, sometimes it seems we spend the majority of this parenting gig making decisions based on incomplete information, hoping we’re doing what’s best for our children.
Did I mention that I hate not knowing what to choose?
That, is actually, what this whole post is about.
I’m stressing out about the diet stuff with my kids. I go back and forth, constantly wavering. My thinking goes something like this: I’ll do the no-additives diet, that is the least restrictive one, it will just require I plan better and spend more money. But how will I explain it to the grandparents? What if they think it’s a hoax? What if they don’t even try to follow it? What if they do but mess up? What if she eats other food at school? How can I even manage this, the supposedly simple one? Maybe I should do GFCF too? Maybe start it later? But that will be even harder. That will be impossible. And what about supplements. But they cost so much. All of this will cost so much. But what if it makes the difference? But what if it doesn’t?
It all costs so much, in time, in money, in inconvenience. I don’t want to be “that family,” the one who has to bring their own food to everything because their kids can’t eat what everyone else can. Already, traveling while trying to keep my son on goat’s milk has been frustrating. I’ve had to be “that mom,”–driving three times farther than the nearest grocery to get the weird stuff–and I don’t even know if it’s helping.
I just don’t know what to do. I don’t know what the right choice is. My husband thinks the no-additives diet is dubious. Is it scientifically proven? Well, no, you can’t have double blind studies that determine the efficacy of these kinds of diets. Obviously the parents that are feeding their kids certain foods know which group they are in, and there is no way to ensure that the elimination diet group actually eliminates the restricted foods. It’s really hard to test in the way other things are tested.
The no-additives diet (and the GFCF diet) are not specifically associated with SPD, but there has been (anecdotal–as far as “science” is concerned) evidence that the no-additives diet benefits some kids with behavioral issues and the GFCF diet helps some kids with autism (which is closely associated with SPD) and ADHD (which is also closely associated with SPD because the diagnosis criteria is almost identical in some cases (like my daughter’s).
Some kids. Closely associated. The reasoning seems so tenuous. If my daughter were “more” of what is concerning–if her behavior issues were more disruptive or her (suspected, though it may be her SPD, or a combination of both) ADHD were more debilitating, I think I would know what to do. As it is, I’m not sure. Things have been a bit better since we started the daily dose of Claritin. Maybe I should wait until school starts and see how things go.
I just don’t know what to do, and I HATE not knowing what to do. I hate not knowing what course to take. Maybe it will help. Maybe it won’t. Maybe I won’t recognize either way (this is probably what I’m most afraid of). All I know is we, as a family, are not happy. We want something to change, and I don’t know how else to make that change (maybe) happen.
So many maybes. So many tenuous connections. So little support. I just sit awake at night, unsure what to do. I read articles and books–in the end all anecdotal evidence, promises of what might happen, but assurances of nothing–and I build my house of cards. If I choose to go down the road of pseudo-recognized elimination diets, how will I keep such a flimsy structure standing when the winds of ignorance, derision, and criticism blow so forefully. Do I want to live in that precariously built house of cards? Constantly rebuilding what is broken?Can I manage being that family?
Why does all of this have to be so hard? I just wish someone would tell me what to do.
How do you make hard decisions with no clear, assured outcomes?